Wednesday, 27 November 2013
Saturday, 23 November 2013
Tuesday, 19 November 2013
....are after school, when Paul is still at work and Caitlin isn't home from school yet and it's just "me and my gal". Like it used to be, when she was a tiny baby and I was on Maternity leave and everyone else was at work or school. We can do whatever we like. Listen to some music, dance. Watch 'The Snowman' on DVD. Tell each other our secrets (ok, well maybe that part is just me, but I know she's listening) I can dress Elin up as Mary from the Nativity for a Christmas card photo and she can laugh because she likes the sheet on her head and I can laugh because she looks ridiculous and won't sit still and I can't get the photo anyway. But it doesn't matter, cos it's just us and we don't have to feel daft. Maybe we'll tell Daddy when he get's home and maybe we won't. Maybe we'll tell Caitlin we listened to the new Lily Allen track and loved it, or maybe we won't. When they get home we might just say 'we're fine, how was your day?' and I will look at Elin and know, and she will know too that sometimes, it's just us. Sometimes, I don't want to share her, I want her to be just mine, just for a short time, just the two of us in cahoots. Like it was before she was born and nobody knew her like I did. Me and my baby. Me, and my gal. Always.
Saturday, 16 November 2013
Not what we want!! This was Elin's position in her chair on returning home. Pretty bad. The journey lasted all of three minutes as we simply could not leave her like this, even though Caitlin was next to her it didn't help. This photo is for any readers who have never seen Elin having a 'bad travel day'. We need that new Wheelchair, pronto!
Friday, 15 November 2013
Wednesday, 13 November 2013
Friday, 8 November 2013
I am thinking I might pinch an Instagram craze here of posting old pictures on a weekly basis. 'Throw-back Thursday' or TBT as it's known on Instagram might have to become Throw-back Friday for the sake of my blog as I have more time on a Friday to search! Anyway, this photo marks my first offering. Happy TBF folks!
This has been stuck to our fridge since early 2009 when it was taken. As it gets gradually grubbier and seems to have inexplicably avoided my school laminator, I thought I would scan it and save it in cyber space before it get's completely ruined. This was the first time we visited Hope House, a local children's hospice and amazing resource for parents of children with life limiting (actually hate that phrase to be honest) illnesses or conditions. We don't actually visit anymore since sadly they stopped being able to provide regular hydro therapy sessions, as for us family support means currently we rarely need overnight care or respite for Elin. However, that doesn't mean we were not able to appreciate the AMAZING work this hospice does and how wonderful the staff are. We know kids that have been going for years- it truly can be a second home. Everyone there is incredible and really puts family's at ease at the most difficult times in their lives. What a great thing to have access to these places as an option for parents in our situation in this country. The parents of children like this in America for example are not offered the same service, it doesn't exist. To think it relies totally on charitable donations blows my mind. In 2009, not long after this picture was taken, my work colleagues said they wanted to raise some money for Elin. We immediately nominated Hope House on her behalf, such was the extent of the impact the place had on us. In the end we raised £3,000 for Hope House by climbing Snowdon but recently I've been thinking it's time for a fresh challenge and I know my amazingly supportive colleagues are up for it again. Not sure what but Im thinking if Cheryl Cole can do Kiliminjaro then...........????? :-)
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