Living with Cerebral Palsy 🍋🍋

Friday 24 February 2017

Tale as old as time...

Well it's been a dream of a half-term for Elin. Despite Storm Doris succeeding in ruining our fun to a degree (in the form of a cancelled hotel room-dammit!) we still had a wonderful week.
Keep it to yourselves, but Elin went on yet another Chester Zoo-date on Monday with Llew, her boyfriend from school. I coached her beforehand on 'treating them mean, keeping them keen' but it soon became apparent that Elin had decided playing it cool was just wasting time.....
DOH!!!
Also, there were hardly any animals out. They clearly enjoy half term as much as most parents.Thus, there are no more pictures from our trip, it was also pouring down (of course, it was the Zoo at half term after all!) and the busiest we have ever seen it there. But as always well worth a visit anyway- so flat for wheelchairs and an amazing fully-equipped disabled changing station- and Elin and Llew definitely appreciated their time together! I am absolutely convinced they recognise one another, tuning into one another's sounds like two baby dolphins. Who knows maybe they even have their own language- I'd like to think so :-) So cute :-)
On Tuesday we met a rather scary new orthotist and by scary I mean she was militarily-efficient and had eyes like a shark that penetrated my very soul with every piercing question she fired at me about the ineptitude of Elin's footwear and AFO's. She wasn't happy with things (neither have we been for a long time) and once she had the bull by the horns, the lady was NOT for turning. That said, I loved her. Give me someone Trunchbull-direct that finds out what she needs to know and creates a proper plan for Elin's feet over a soapy mum-pleaser any day. I don't want to be your friend, I want you to do your job really well and look after Elin's feet. And boy does it sound like the Anna Wintour of the orthotics department is going to do that (erm.....she's not going to read this, right?!?)
On Wednesday we were supposed to be going away and staying in a really nice hotel in Llandudno. Llandudno, like Chester Zoo and Norfolk, is flat as a pancake. So perfect for Elin's chair, which is why it remains one of our favourite destinations. It could do with a decent disabled changing station somewhere but it's not a place that exactly rolls with the times, so maybe in the future?! But then Doris happened. Nope, not some gangster granny that goes to bingo with your Nan, it was a storm (seriously they couldn't think of anything better than Doris?) We were a bit worried about driving back on Thursday down the devils highway that is known as the A55 in the midst of a red weather-warning so like the true Brits we are we didn't stay at home we just resolved to go for the day instead. Everyone knows the best time to go to the beach is when its so windy and wet that it feels like you're wading through a continual cold bath with an industrial fan in your face- because there's nobody else there! Hurrah!!
Everyone say "Private Beach'!!!

Rainy pier! 

But, oh..I do like to be beside the seaside....

Getting my 'Hygge' on back in the sanctuary of the St George's. Mmmmmm snuggly.

I fancy some of my Daddy's cuppa!

So we risked death-by-evil-seagull and had some chips for dinner followed by another stroll (roll?) and came home, which I think turned out to be the right decision. Thursday consisted of battening down the hatches and having lots of warm cuddles and clever playing with switch-toys...Go Elin!!!!!
Then what better way to round of half-term than a spot of shopping? Elin has been SUPERB in her chair and her dystonia has largely been kept at bay all week.  So she paid a traditional visit to the Disney Store and as usual absolutely lit-up with the fab music they play in there (I worked in the Disney Store in Edinburgh one Summer whilst I was at Uni and that music wasn't so fab then. The opening bars of 'Colours of the Wind' from Pocahontas still haunt my nightmares) . She also loves the bright colours all around and seemed particularly taken with the Beauty and Beast merchandise (the beautiful yellow dresses and the fluffy Beast toy, not the Emma Watson Belle dolly which is horrific- honestly, google it). This is especially poignant for me because it's one of my favourites and she has always loved the soundtrack. I saw the original when I was 11 and was captivated. The new live-action version is coming out in March and I think Elin's going to love it. I can't wait to take her. I might have to buy her the official jumper I saw in store today advertising the film. It said 'True beauty comes from within' across it. 
I'll second that.
Have a great weekend guys.
xxxxxx



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